Trials

I hope when I grow up, I can be more like my son. That thought came to me tonight when I came downstairs and saw my son’s iPad and iPhone lying on the couch next to my office. At first glance, that may not seem like a big deal. But when you know the story […]

This is the picture I took last night at the beginning of our Valentine’s dinner. I look forward to this dinner with my two Valentine’s every year. And Dave looks even more forward to it. We were supposed to go to Chart House, but with the recent storm, the storm warning in effect until later

I can’t believe it’s been a year since I’ve written a blog post. The last one was almost exactly a year ago. It was when we went to Hawaii to help my niece move to college. We also were celebrating both of our birthdays. It was supposed to be an awesome family trip. Dave had

Two decades. Twenty years. Today is D day plus TWENTY years. October 1, 2003, I heard those infamous words, “Yes. He has Autism.” I can’t believe how fast the time has gone. The saying, “the days are long but the years are short,” is SO true (and some of those days were  incredibly long). As

I think it’s safe to say this has been one of the most stressful weeks of my life. I know my son so innately. This trip, including today, has proved that. I couldn’t know him more if he were still being formed inside my body. I have spent all week, in Hawaii no less, on

Our first night in “paradise.” Interesting how paradise and hell can live together simultaneously. At least in my world. I’ve spent the last 4 years dreaming about getting back to my ‘island.’ I have always felt at peace and ‘home’ on an island. Doesn’t matter which one. I just have always known I belonged right

64 days. It was truly uncanny how it happened today. I had an appointment with Dave’s neurologist late this afternoon today. I knew he would ask, so I went to the calendar and started to count. Dave always follows me around, ESPECIALLY when I go to the calendar. He was watching me counting and realized

It was the 2nd of July. Dave’s last seizure was May 29, 2022. I had begun marveling with each passing day because we had gone 34 days without a seizure. This was a record. He hadn’t gone a month without seizures since this nightmare started. I was hopeful we had finally found the ‘right’ concoction

Where do I begin? I have hope, for the first time since November 21, 2021. Dave, Ronnie and I saw a doctor last night that blew my mind and gave me a renewed sense of expectation. I need to go into some back stories in order to provide full context. Ever since Dave’s seizures started,

I don’t feel like I have any coherent story or learning to share today but rather just felt compelled to write. March 2nd I was sitting at my desk, in a zoom work call, when Dave’s ‘seizure watch’ went off. Within moments I got confirmation that he indeed had a seizure and needed to be